We set out to start this charity after a close friend’s three-year-old daughter, Emma (at left), was diagnosed with stage 4 Medulloblastoma on February 23, 2018, a form of brain cancer that develops tumors in the brain. She immediately received treatment at Rady Children’s Hospital including surgery and chemo therapy.
Unfortunately, Emma suffered Posterior Fossa Syndrome, most common after surgery to remove a medulloblastoma, which rendered her motionless and speechless for months. Needless to say one parent had to be at the hospital with her at all times.
We were personally able to see how this put financial stress on the parents in addition to the painful emotional toll it takes on the family. After organizing a fundraiser for the family, we decided that a charity foundation should be formed to help more families and raise funds for research as these departments are greatly in need of funding.
- Brain and other central nervous system (CNS) tumors are the most common cancer in children age 0-14 years in the US.
- Brain and other CNS tumors are the largest cause of cancer-related death in children age 0-14 years in the US.
- Incidence of malignant brain and other CNS tumors overall in children age 0-14 years increased between the years of 2000 and 2014.
- It is estimated that there will be 3.310 new cases of brain tumors in children age 0-14 years in the US in 2018
- While mortality rates due to childhood cancer have improved during the last 40 years, improvements in childhood brain tumor survival have not kept pace with other common childhood cancers.
(Source: CBTRUS Fact Sheet for Pediatric Brain Tumors)
How do we help families in need?
We provide grants to families hit hard with not only the reality of their child being affected by cancer but by the overwhelming financial conditions that happen as a result.